Miles For Mabel — Hurley
A 1.5 mile family run/walk to raise awareness and money for Mabel Grace and CDKL5!
Mabel Grace was born in May of 2013 to Jeff Decker and Carly Tangney-Decker. She is diagnosed with a rare genetic disorder called CDKL5. She is a beautiful, happy little girl, but has special needs associated with her condition. We are hosting a fun, family friendly event in Hurley, NY to promote awareness about her condition, celebrate kids with special needs, and raise money for Mabel’s future and CDKL5 research.
The run will start at the Hurley Mountain Inn and go down Old Route 209, turn around at Riverside Drive, and come back. The whole route is 1.5 miles. Come run or walk with your family and support a great cause!
There will be music and food, crafts and games, raffles and booths set up by some local businesses. It will be a great time for everyone!
The cost is $15 to run or walk and includes a T-shirt.
Please go to http://www.mabelgrace.com/Mabel_Grace/6_14_Miles_for_Mabel.html
to print out a waiver form.
Or, make out your check (and shirt size!) and send it to:
Mabel Grace SNT
PO Box 273
Hurley, NY 12443
If you are unable to attend, and just want to donate, or get a T-Shirt, please send your checks to that same address ($15 for a T-shirt, include where to send it, and unlimited amount for donations!!!) or send an email to firstname.lastname@example.org
Thank you, and we hope to see you there!
Tell your friends and spread the word!!!!